Caregivers want a serving to hand

Emma Henderson’s visitor column for February 23, “Dwelling Care Staff Want Good Jobs and Respect,” struck me. I sympathize along with his arduous work, depressing wage and lack of advantages. However I wish to draw consideration to a different group of caregivers – mother and father and kids who take care of terminally unwell relations of their houses with none compensation.

I am 73 and my husband is 77. I believed this may be our golden age.

Our 39 12 months previous daughter with Down’s syndrome lives with us and is ready to care for herself with little assist however requires supervision.

Nonetheless, our 51 12 months previous son has a neurodegenerative mind illness referred to as Huntington (a genetic situation inherited from his organic father). I’m his sole caregiver, the assistant in all his every day actions. He wants assist with showering, dressing and consuming. I can not keep in mind the final time I sat down and had dinner with no break. We can not exit and go away it unattended for greater than an hour.

His 53-year-old brother suffers from the identical sickness and though he can nonetheless stay in his personal home with the assistance of two of his youthful brothers, I’m accountable for managing his physician’s appointments, his medicines and his numerous races.

I’m wondering why no effort is made to assist the hundreds of caregivers who’re completely unpaid.

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